Category: Uncategorised

I am sad….😔

I hurt in every fibre of my body, from head to toe. There is no reason for it, other than my disorders. All my muscles are inflamed, most of my joints hurt, elbows, hips, knees, even my ankles. I’m told they think I also have Fibromyalgia, just another problem to add to my long list. …

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Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo

Dystonia sufferers may find this question and answer session with Dr Harbinder Sandhu,done for The Dystonia Society very interesting. 🙂 http://www.dystonia.org.uk/index.php/26-living-with-dystonia/638-dr-harbinder-sandhu-q-a-video Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo So that you can find individual questions easily, the timings for each question are included below: 2:00 – Can you tell us a …

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Botox Injections 

I had my Botox Injections last Tuesday, and they couldn’t have come soon enough! I was in so much pain with my eye, neck and head that I was having trouble sleeping. I thought you might like to see the injection points that I have, so here are some pictures to demonstrate. I have the …

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FMD and the difference between other movement disorders

Functional Movement Disorder has many overlapping symptoms of other movement disorders, such as Dystonia, MS, Parkinson’s, Lyme Disease, Lupus, Chorea, and many, many other movement disorders. The difference being that whilst these others are an organic brain disorder, then some may possibly shorten life. The functional movement disorder is not, it is classed as psychological …

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Mobility Scooters And Insensitive Car Drivers!

   People must think that a disabled person popping onto a mobility scooter, and collecting the kids from school must be so easy! What they don’t factor in, is the getting it out of the garage or shed, and back into the garage or shed on the return. It kills my back from stretching to …

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I Had A Seizure But Never Knew! :( 

I woke this morning with terrible pain in my head, so painful I couldn’t think straight. Then my partner told me I’d had a seizure about 5.30am, and did I remember? I didn’t! I’m not getting better, I’m getting worse. I cried, I had tears streaming down my face. I’m told I have NEAD Non …

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