Dystonia sufferers may find this question and answer session with Dr Harbinder Sandhu,done for The Dystonia Society very interesting. 🙂
Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo
So that you can find individual questions easily, the timings for each question are included below:
2:00 – Can you tell us a little bit about your research project and what helped inform it?
12:46 – What types of dystonia did participants in your study have?
13:27 – Is there any relationship between the type of dystonia an individual has and the non-motor symptoms they might experience?
14:27 – What difference do you think your research will make to people with dystonia?
15:25 – How effective do you feel Mindfulness is?
16:24 – Do you think Mindfulness is here to stay or is it just a current trend?
20:03 – I feel alone and isolated because my dystonia makes it hard to leave the house. Is this normal?
22.11 – I have Cervical Dystonia and I swim twice a week. I feel better in spirit and health after swimming, but my neck feels worse the next day. I have taken 2 weeks off from swimming but the neck is worse. Should I just press on and swim for the sake of my sanity?
24:06 – How necessary is an understanding of dystonia when offering support with non-motor symptoms? (ie for physio, CBT, pain management etc.)
25:11 – Since developing dystonia I noticed that I have also started to feel anxious and depressed and I find it hard to talk to my family about it. Do other people with dystonia feel like this?
28:13 – What are the next steps with your research project?
I hope this has been helpful 🙂