I Wish….

  I wish I was here, in a mystical land.

Where no pains exist, from feet up to hands.

Where there is only laugher, and joy to be had.

A place I can live, where there’s nothing that’s bad!

 © Dystonia & Functional Movement Disorder Sufferer



I have no energy today, it has not been a good week. I have had two seizures and ongoing spasms throughout the week, which leaves me feeling extremely tired and very weak.

After a seizure, I find I really need to sleep. It is as if my head needs to repair, but I have to lay down I don’t have a choice.

Here is some information on how to look after a person having a seizure, and most important is that you don’t act scared. Just stay calm and as the seizure stops, tell the person they are not alone and they are safe.


I desperately wanted to put the back up on this site that I have, it is just a month or so short of the first year I started blogging. I am thinking I can put all those posts back on, then write how I lost my site and everything with it. Then I will restart from there, it is a great shame, but could also be a good way of moving forward as things have changed so much.

Well I need to rest, nothing new there then as I am always fatigued!

Catch you later folks 🙂



Hi folks!


Hi if you have taken a look in the last week, you will have noticed that my blog had disappeared. All my own fault, I messed up during having a bad head day. Whilst logging in to do a blog post, I forgot my password and blocked myself out!

i tried to get back in, had not backed my blog up since the first year and so have lost years of posts. May it be a lesson to my fellow bloggers, backup your databases! 🙁

I am so very, very lucky to have GREAT SITE HOSTS. I have to say a massive THANKS to “Cloud Nine Hosts”! 🙂




So here I am pretty much starting over, though I think once I have reset the sites look I may try to load the first years posts back on. I am umming and arrhing about whether to just start totally afresh. We will see.

Anyway, that’s how my blog stands at the moment. Sad and forlorn, a bit like myself really after having a day of seizures and head pulling from painful muscle spasms from my Dystonia.

I hope to catch up again soon, take care folks 🙂 x



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