Dystoniasufferer

Author's details

Date registered: 25th September 2015

Latest posts

  1. The Pain Of Loneliness — 15th September 2017
  2. Do you have neck pain? Could it possibly be Lymes Disease?  — 18th August 2017
  3. Hi it has been a while! — 29th March 2017
  4. Working Together With The Patient — 1st October 2016
  5. Insufficient Good Bacteria In The Gut A Reason For MS? — 28th June 2016

Most commented posts

  1. I am sad….😔 — 6 comments
  2. Hi folks! — 4 comments
  3. Back Injections – Ouch :( — 4 comments
  4. Mobility Scooters And Insensitive Car Drivers! — 2 comments

Author's posts listings

Jun 10

Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo

Dystonia sufferers may find this question and answer session with Dr Harbinder Sandhu,done for The Dystonia Society very interesting. 🙂 http://www.dystonia.org.uk/index.php/26-living-with-dystonia/638-dr-harbinder-sandhu-q-a-video Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo So that you can find individual questions easily, the timings for each question are included below: 2:00 – Can you tell us a …

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Jun 07

Aww I Hurt! 

Image from Google pictures. I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May. I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that …

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May 23

Botox Injections 

I had my Botox Injections last Tuesday, and they couldn’t have come soon enough! I was in so much pain with my eye, neck and head that I was having trouble sleeping. I thought you might like to see the injection points that I have, so here are some pictures to demonstrate. I have the …

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May 23

FMD and the difference between other movement disorders

Functional Movement Disorder has many overlapping symptoms of other movement disorders, such as Dystonia, MS, Parkinson’s, Lyme Disease, Lupus, Chorea, and many, many other movement disorders. The difference being that whilst these others are an organic brain disorder, then some may possibly shorten life. The functional movement disorder is not, it is classed as psychological …

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Mar 21

Mobility Scooters And Insensitive Car Drivers!

   People must think that a disabled person popping onto a mobility scooter, and collecting the kids from school must be so easy! What they don’t factor in, is the getting it out of the garage or shed, and back into the garage or shed on the return. It kills my back from stretching to …

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Feb 28

Health Services Need To Up Their Game For Neurological Patients! 

   I saw this on a news site I was reading, and I decided I must share. For many years now, I have found myself stuck in a merry go round. Sent from one hospital to another, for all the different appointments for treatments I need for my ongoing problems.  http://www.bbc.co.uk/news/health-35660467 Hopefully now this report …

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