Dystoniasufferer

Author's details

Date registered: 25th September 2015

Latest posts

  1. Working Together With The Patient — 1st October 2016
  2. Insufficient Good Bacteria In The Gut A Reason For MS? — 28th June 2016
  3. I am sad….😔 — 13th June 2016
  4. Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo — 10th June 2016
  5. Aww I Hurt!  — 7th June 2016

Most commented posts

  1. I am sad….😔 — 5 comments
  2. Hi folks! — 4 comments
  3. Back Injections – Ouch :( — 4 comments
  4. Mobility Scooters And Insensitive Car Drivers! — 2 comments

Author's posts listings

May 23

FMD and the difference between other movement disorders

Functional Movement Disorder has many overlapping symptoms of other movement disorders, such as Dystonia, MS, Parkinson’s, Lyme Disease, Lupus, Chorea, and many, many other movement disorders. The difference being that whilst these others are an organic brain disorder, then some may possibly shorten life. The functional movement disorder is not, it is classed as psychological …

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Mar 21

Mobility Scooters And Insensitive Car Drivers!

   People must think that a disabled person popping onto a mobility scooter, and collecting the kids from school must be so easy! What they don’t factor in, is the getting it out of the garage or shed, and back into the garage or shed on the return. It kills my back from stretching to …

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Feb 28

Health Services Need To Up Their Game For Neurological Patients! 

   I saw this on a news site I was reading, and I decided I must share. For many years now, I have found myself stuck in a merry go round. Sent from one hospital to another, for all the different appointments for treatments I need for my ongoing problems.  http://www.bbc.co.uk/news/health-35660467 Hopefully now this report …

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Jan 11

Back Injections – Ouch :(

   Today I spent half the day in Tameside Hospital.  Once I was dropped off by my partner, I got booked in by a delightfully rude woman who must love her job! Then waited to be taken to the ward.  After filling in a “few” sheets of paper work, and sat on my mobility scooter, …

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Nov 30

And So Life Carrys On!

   I am sat up in bed, with so much pain in my back that I am beyond crying.  The pain honestly feels like I am pregnant, everyday, with the weight being pulled down through my back. As if I am having labour pains!  My hips feel as if they have dropped, again the pains …

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Nov 07

I Had A Seizure But Never Knew! :( 

I woke this morning with terrible pain in my head, so painful I couldn’t think straight. Then my partner told me I’d had a seizure about 5.30am, and did I remember? I didn’t! I’m not getting better, I’m getting worse. I cried, I had tears streaming down my face. I’m told I have NEAD Non …

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