Dystoniasufferer

Author's details

Date registered: 25th September 2015

Latest posts

  1. Hi it has been a while! — 29th March 2017
  2. Working Together With The Patient — 1st October 2016
  3. Insufficient Good Bacteria In The Gut A Reason For MS? — 28th June 2016
  4. I am sad….😔 — 13th June 2016
  5. Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo — 10th June 2016

Most commented posts

  1. I am sad….😔 — 6 comments
  2. Hi folks! — 4 comments
  3. Back Injections – Ouch :( — 4 comments
  4. Mobility Scooters And Insensitive Car Drivers! — 2 comments

Author's posts listings

Mar 29

Hi it has been a while!

Picture from Bing Images I’ve not written for such a long time, I just have not been well enough to put the small amount of energy I had, into blogging. I have needed to give everything to myself, give me time to try to heal a little. If we never stop and look at ourselves …

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Oct 01

Working Together With The Patient

It is great to read an article, where they talk about “working together with the patient”.  Patients do have a voice, and they do Google their problems. So even if they may have picked up and stayed with the wrong medical diagnosis, it is better to be able to talk it through with the doctor …

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Jun 28

Insufficient Good Bacteria In The Gut A Reason For MS?

http://www.nationalmssociety.org/Research/Research-We-Fund/Stop-MS-In-Its-Tracks I think we may all have heard, that the gut (Human gastrointestinal tract) can definitely have an affect on people in many different ways. This research link below however, says they believe it could be the reason for some people getting Multiple Sclerosis. I have not heard of this before, so it is of great interest. …

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Jun 13

I am sad….😔

I hurt in every fibre of my body, from head to toe. There is no reason for it, other than my disorders. All my muscles are inflamed, most of my joints hurt, elbows, hips, knees, even my ankles. I’m told they think I also have Fibromyalgia, just another problem to add to my long list. …

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Jun 10

Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo

Dystonia sufferers may find this question and answer session with Dr Harbinder Sandhu,done for The Dystonia Society very interesting. 🙂 http://www.dystonia.org.uk/index.php/26-living-with-dystonia/638-dr-harbinder-sandhu-q-a-video Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo So that you can find individual questions easily, the timings for each question are included below: 2:00 – Can you tell us a …

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Jun 07

Aww I Hurt! 

Image from Google pictures. I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May. I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that …

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