I am sat up in bed, with so much pain in my back that I am beyond crying.
The pain honestly feels like I am pregnant, everyday, with the weight being pulled down through my back. As if I am having labour pains!
My hips feel as if they have dropped, again the pains can be excruciating. This is having a massive effect on my ability to move.
Even last night, my partner woke me, saying I was crying in my sleep. Reason? Once awake, I was in agony from my body pains!
Saturday I had awoke, and I really didn’t feel well. I had of course all my usual problems and pains, but I just didn’t feel right.
Unfortunately by late afternoon, I had been sat on the sofa downstairs reading from my iPad. When my head started dropping, I thought I was tired but wanted to finish what I was reading.
My partner had obviously been watching, as he said to me that wouldn’t it be better to put my iPad away and give my eyes a rest? I replied I was reading, I wanted to finish it. My head had continued to keep dropping. Not something I always notice, as I have them quite often. Sometimes they are very small drops, others are large and can nearly topple me over with the weight of my head and the way I am stood when my head drops. I usually make to sit down, and do rest my eyes. I’m not totally sure what these are, and it’s never come up in a conversation with any of my Doctors.
Well back to this Saturday just passed, as I was sat on the sofa. My partner said again to put my iPad down, I don’t remember too much following hearing him say that. It seems I drifted in and out, as I was having a seizure, he said I just went! I was out for a while, then he said I went to sleep. He knew this, because I started to snore!
He kept his eye on me, and when I came round (he had been cooking the tea) said he would put my tea aside for me. I was in no fit state to eat, I wasn’t even back round properly yet.
I saw no reason for this seizure, no upset, no stress. I had done a bit of drawing with some new brush pens I’d got, and a small sketch pad. I had enjoyed being able to draw a little, and colouring and shading. Though the pens are nothing like a brush! If you are interested in looking at my artworks, they are on Facebook page Andrea’s Arts, just search
I had then been reading up and researching about neurological problems, there had been something about a possible cure for Alzheimer’s. Any time you read something about a cure or something to help a neurological disorder, is exciting and can mean possibility of finding help for other disorders. It had been this which I was reading as my head started to drop, but still no reason for a seizure. I hadn’t been on my iPad for very long, so j don’t think the back light from the screen was a factor in my seizure either!?
This all just enforces my belief, that seizures are not always set off by a reason. I’m not saying g that they can’t be, just not all the time.
So I had a bad day Saturday, had to take it easy yesterday Sunday. Now I’m feeling so tired from waking in the night, with crying in my sleep, the pain in all my body. Waking most nights for the toilet, and with a constant dry mouth and breathing problems needing to take sips to wet my mouth and use my inhalers for my chest.
There are times it all gets a bit too much!
I am so tired, I just want to go back to sleep 😴💤
Catch you later folks, and thanks as always for reading X.